If The Shoe Fitz - A blog about the extra love, lessons, and adventures that an extra chromosome brings.

Infant feet and toddler feet on a bed with white shits and the text overlay "if the shoe Fitz"

LIFE UPDATES

LATEST BLOG POSTS

Comparison is the Thief of Joy

March 5, 2023

Comparison is the Thief of Joy It’s something I remind myself often, even as I feel a deep internal bitterness at the thought. But it’s true. There are moments when […]
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It Takes a Village

December 30, 2022

It Takes a Village Not only that, we survived our first cold weather game. Not only THAT, we had an absolute blast doing so. But they weren’t kidding when they […]
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Always Make an Entrance

December 12, 2022

We had our first Gigi’s Playhouse experience and it was fantastic. Jeremy is still in Bowl prep so it was just me and the kiddos, and we were late (of […]
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The C Word

December 7, 2022

(Originally written in April 2022) She got to experience her first and last Mardi Gras in New Orleans, including a bead packet to the noggin (thanks to dad), before the […]
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Expecto Patronum

December 3, 2022

(Originally written in April 2022) I never used to consider the odds. Always thought I’d be forever in the majority. I mean, I’m the person who never wins raffle prizes. […]
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SOCIAL MEDIA

A GLIMPSE INSIDE THE CHAOS

@classiclyss
Brb gotta gobble up this turkey #downsyndrome #downsyndromeawareness #theluckyfew #tubiebaby #gtube #heartwarrior
♬ original sound – thesimplychicstyle

@classiclyss
One of my greatest fears after Fitz’s diagnosis was that I had failed Beau. Would she understand the need to have patience as he grew? Would his heart be strong enough for them to laugh and play? Would she resent me for not providing her a “normal” sibling? Wow was I ever wrong. The love she has for her brother is already an unbreakable bond. All she sees and knows is Baby Fitz, her brother. She teaches me about unconditional love every day. #downsyndrome #nationalsiblingsday #heartwarrior
♬ Home – Edith Whiskers

@classiclyss
A year ago today we received our prenatal Down syndrome diagnosis. September 28th. National son’s day. A memory of such vivid detail I can still feel it in my chest. If I only knew then what I know now, that my life would be so full. Full of love. Full of laughter. Full of community. But now… also full of purpose. If only I could have trusted the words of those who have been in my shoes. If only I would have let in the hope everyone assured me would come. If only I had a sneak peek of how much love this sweet boy would bring not only to me, but to our ever growing Fitz fan club. So for anyone else who just received their diagnosis. You don’t have to believe me now or trust that it will get better. I have enough hope, love, and confidence to hold you up right now if you feel you need to fall apart. ddownsyndromeddownstndromeawarenessttheluckyfewuupsyndromeddownsyndromelovettubiebabyhhypoplasticrightheartsyndromenationalsonsday
♬ original sound – Alyssa

EDUCATE YOURSELF

RESOURCES

Down Syndrome

Down syndrome and Trisomy 21.

Heart Defects

Not all heart warriors are the same.

Tube Feeding Life

Ain’t nothing but a g-(tube) thang baby.